Q: Is NF1 always inherited?A: No, this condition is just as often a spontaneous change as it is inherited from a parent. This is possible as de novo (new) changes in the gene can occur in the egg or sperm cell of an unaffected parent, or at conception of an embryo.
Q: Is NF1 contagious? A: No, you cannot catch NF1 like how you would catch common colds/flus. NF1 is a condition one is born with and is not contagious.
Q: What are the chances that I will have another child with NF1 if neither my spouse nor I have it? A: In about 50% of cases, NF1 is the result of a spontaneous change (de novo) in the genetic material of the sperm or egg at conception, in families with no previous history of the disease. In such cases, the risk of having another child with NF1 is low (< 1%).
Q: What should someone do if they think they have NF1?A: Only a trained healthcare professional familiar with NF1 can make the diagnosis of this condition. Please approach a doctor/healthcare professional if you think you or your child has NF1.
Q: Is NF1 considered a disability?A: No, many people with this diagnosis can still live long, healthy and fulfilling lives. As the manifestation of symptoms differs between individuals, the complications faced will vary in severity.
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